WHO IS SUSIE WEBER?

It seems my life is always pointing me in some new direction. I tend to follow my heart and try to embrace and recognize new opportunities when they present themselves. Life has certainly provided me with obstacles along the way. My life changed forever when I was diagnosed with Multiple Sclerosis in 1987.

I used to say that I’ve worked very hard to never let my MS define me. How ironic is that? I realize now that that’s exactly what it’s done. It DOES define me – not by the negative aspects of the disease – but by the  positive way I tackle life. You don’t need to know that I have MS to recognize that I am very compassionate and have an extraordinary amount of personal drive. It would seem that MS has actually made me a better person.

My 12-year-old son is on the autism spectrum, my daughter has been struggling with ADHD since first grade and my oldest son became insulin dependent at age eight. Because of my experience with MS, I am better equipped than most to endure  these challenges and guide my children over their latest hurdles. In turn, they have become amazing people in and of themselves.

About 6 years ago, I decided to try exercising again. I wanted to see if my body would cooperate. I could barely walk a mile when I started, but have since run 7 half marathons. I am not a star, but find that I am a positive role model, especially when I influence others to be healthier in some small way.

Until now, only my closest friends and long-time associates are aware of my health challenges. I was afraid that learning about my disease might make my business associates and clients apprehensive. I am writing this blog to share with you what's  possible with MS, how I'm dealing with it on a daily basis and what I've learned from my MS peers 

I had the great opportunity to participate in the Leap of Fairth MS/PD expedition to Mt. Kilimanjaro in July 2011. I got me out there sharing the story of what's possible with MS. I am motivated to raise awareness for the disease and learn more from my MS peers everyday. MS has made me stronger in ways I cannot comprehend. 

 

CYBERCAST LINK FOR 
THE MS/PD KILIMANJARO
CLIMB (July 10 - 24, 2011)

I believe we are Team 2


PRINTS

Limited edition prints signed by Susie Weber are still available.

 

MUSIC check out the song

 

Monday
Dec242012

Just in Time

The UPS delivery came an hour before our family holiday celebrations began. 

 

Wednesday
Dec192012

More than a Mountain books

Here's the link to order from amazon:

 

http://www.amazon.com/More-than-Mountain-Leap-Faith/dp/1481048465/ref=sr_1_10?s=books&ie=UTF8&qid=1355942847&sr=1-10&keywords=more+than+a+mountain

Tuesday
Dec182012

MS Shopping tips

I'm on my way out the door to get my holiday shopping under control. I have only picked up a few special gifts here and there and dread the chaos of the mall. Still I know I will be able to handle it this year. I am stronger than ever physically and mentally. But the minute I am in the mall memories of shopping hell from Christmas' past will hit me.

When my kids were little I remember calling my husband in tears. I had to slump over my shopping bags and try to nap because I could barely walk anymore. In the past I've had to go back to the car to sleep for an hour, wake up and then shop again (or sleep in the parking lot before heading home). One year was so challenging, we rented a wheelchair (it was the best thing I did that year). Shopping with a wheelchair made me respect my peers that use one even more. 

Every year a get a little smarter about my MS issues and holiday shopping. Here are a few tips that makes it easier for me.

1) If you can pick up your packages at a drop point do it. (some stores with even wrap you packages will you stow them)

2) Leave your coat in the car so you don't have to carry it (even if it's cold)

3) Do your homework. Make lists and surf the net for ideas before you head out. 

4) Use your smart phone for you lists so you don't have to carry anything extra

5) Bring along a shopping buddy. Ideally someone who's done with their shopping already and will help you finish up yours. These shopping buddies sometimes wait in line for you, carry packages, and make tSave & Closeaking a break more fun.

6) Bring your sense of humor.

Friday
Dec142012

It's coming!

Next week the book about our MS/PD Kilimanjaro adventure with be released on amazon.com. It's a collection of stories written by the climbers themselves. These accounts are inspiring as reveal personal insight into what it took to get to the mountain, how the experience changed lives, and much more. 


Friday
Dec142012

Where have I been?

This past June my father, John Hinrichs, passed away after a long battle with lung disease. He was a great man, that touched the lives so many people through example, mentoring and professional excellence. I was a daddy's girl from the beginning and miss him terribly. Still I find strength in the things he taught me and treasure each memory. 

To say the least, life has been more chaotic and unpredictable than usual and I hope to find solace with my husband and children over the holidays.

I am looking forward to blogging again about my day-to-day with multiple sclerosis and sharing my random thoughts and experiences concerning MS. 

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