WHO IS SUSIE WEBER?

It seems my life is always pointing me in some new direction. I tend to follow my heart and try to embrace and recognize new opportunities when they present themselves. Life has certainly provided me with obstacles along the way. My life changed forever when I was diagnosed with Multiple Sclerosis in 1987.

I used to say that I’ve worked very hard to never let my MS define me. How ironic is that? I realize now that that’s exactly what it’s done. It DOES define me – not by the negative aspects of the disease – but by the  positive way I tackle life. You don’t need to know that I have MS to recognize that I am very compassionate and have an extraordinary amount of personal drive. It would seem that MS has actually made me a better person.

My 12-year-old son is on the autism spectrum, my daughter has been struggling with ADHD since first grade and my oldest son became insulin dependent at age eight. Because of my experience with MS, I am better equipped than most to endure  these challenges and guide my children over their latest hurdles. In turn, they have become amazing people in and of themselves.

About 6 years ago, I decided to try exercising again. I wanted to see if my body would cooperate. I could barely walk a mile when I started, but have since run 7 half marathons. I am not a star, but find that I am a positive role model, especially when I influence others to be healthier in some small way.

Until now, only my closest friends and long-time associates are aware of my health challenges. I was afraid that learning about my disease might make my business associates and clients apprehensive. I am writing this blog to share with you what's  possible with MS, how I'm dealing with it on a daily basis and what I've learned from my MS peers 

I had the great opportunity to participate in the Leap of Fairth MS/PD expedition to Mt. Kilimanjaro in July 2011. I got me out there sharing the story of what's possible with MS. I am motivated to raise awareness for the disease and learn more from my MS peers everyday. MS has made me stronger in ways I cannot comprehend. 

 

CYBERCAST LINK FOR 
THE MS/PD KILIMANJARO
CLIMB (July 10 - 24, 2011)

I believe we are Team 2


PRINTS

Limited edition prints signed by Susie Weber are still available.

 

MUSIC check out the song

 

Entries in symptoms (1)

Wednesday
Jan022013

Looks are deceiving.

The book, More than a Mountain, seems to spur on more and more questons about MS and PD. This is a good thing. However, these are just one-chapter accounts of our kilimanjaro experience and only give the reader a small glimpse into a few of the overwhelming symptoms that these neurological diseases dish out. 

On New Year's Eve I gave two of my friends a copy of the book and after thumbing through it for a few moments they started asking me lots of questions. One said “your fine now, right?, I mean you don't have symptoms, anymore, right?“ and the other said, “You look so good, better than ever”. I am flattered by these thoughts, but had to set it straight for the millionth time.

I STILL deal with my multiple sclerosis (MS) every single day. I STILL have symptoms, some are chronic and some come and go. I have been fortune because I haven't had to deal with some of the more frustrating symptoms like vision loss in several years. The overwhelming fatigue and burning sensations and pain are the most difficult daily issues. Muscle stiffness and cramping/spasms are not much fun either. Permanent numbness on my face seems incidental now, but serves a reminder of past episodes that I'd prefer to forget. Issues swallowing and random bladder issues freak me out regularly. But, the reality of congnitive disfunction keeps me fighting the most. 

Lots of the people I know that have MS really do “look” fine, but that's because they are fighting the disease and not letting it take over their lives. Some of my MS peers need to be in wheelchairs or have some other battle scars that are more obvious or visable. I think these people are even tougher than I know. All I can say is that MS is battle everyday and we are all trying to cope even if you can't see it or we don't whine about it. 

...justing sayin'