WHO IS SUSIE WEBER?

It seems my life is always pointing me in some new direction. I tend to follow my heart and try to embrace and recognize new opportunities when they present themselves. Life has certainly provided me with obstacles along the way. My life changed forever when I was diagnosed with Multiple Sclerosis in 1987.

I used to say that I’ve worked very hard to never let my MS define me. How ironic is that? I realize now that that’s exactly what it’s done. It DOES define me – not by the negative aspects of the disease – but by the  positive way I tackle life. You don’t need to know that I have MS to recognize that I am very compassionate and have an extraordinary amount of personal drive. It would seem that MS has actually made me a better person.

My 12-year-old son is on the autism spectrum, my daughter has been struggling with ADHD since first grade and my oldest son became insulin dependent at age eight. Because of my experience with MS, I am better equipped than most to endure  these challenges and guide my children over their latest hurdles. In turn, they have become amazing people in and of themselves.

About 6 years ago, I decided to try exercising again. I wanted to see if my body would cooperate. I could barely walk a mile when I started, but have since run 7 half marathons. I am not a star, but find that I am a positive role model, especially when I influence others to be healthier in some small way.

Until now, only my closest friends and long-time associates are aware of my health challenges. I was afraid that learning about my disease might make my business associates and clients apprehensive. I am writing this blog to share with you what's  possible with MS, how I'm dealing with it on a daily basis and what I've learned from my MS peers 

I had the great opportunity to participate in the Leap of Fairth MS/PD expedition to Mt. Kilimanjaro in July 2011. I got me out there sharing the story of what's possible with MS. I am motivated to raise awareness for the disease and learn more from my MS peers everyday. MS has made me stronger in ways I cannot comprehend. 

 

CYBERCAST LINK FOR 
THE MS/PD KILIMANJARO
CLIMB (July 10 - 24, 2011)

I believe we are Team 2


PRINTS

Limited edition prints signed by Susie Weber are still available.

 

MUSIC check out the song

 

SUSIE'S EVER-CHANGING BUCKET LIST

Here it goes (in no particular order)

Climb Mt. Kilamanjaro

Half Marathon on the Great Wall of China

Complete a Triathalon

Draw every day in a sketchbook. Just for me, not for anyone else.

Spend more time with my kids 

Help my parents

Garden (not just in spring, but all summer long)

Submit a short story to a magazine

Take voice lessons (I am sure some of you are amused by this)

Practice Spanish with Josh

Run a full marathon

Travel more

Cook new recipes

Advocate, Advocate, Advocate (for those who cannot and for causes that I believe in)

World peace

Collaborate with Sher on the books we have been discussing

Match all the socks in the basket

See more of the USA

Shoot a pistol

Go fly fishing

Trail run in the Italian Alps

Do Service Work

 

 

« How this whole thing got started for me | Main | IN THE NEWS »
Monday
Jul042011

A few more details about the MS/PD Climb

July 13: We jeep to the Machame trailhead, winding through coffee fields and small forests of ferns and flowers. After registering with the park service, we meet our porters from the Chagga Tribe, indigenous to the slopes of Kilimanjaro. They are an integral part of our African journey and become friends and provide insight into their culture and society. Our climb begins on the edge of a rain forest (elevation 5,800!). Below the watchful eyes of the monkeys, we trek seven hours to the Machame Camp (10,000!) and set camp for the night.

July 14: Leave the Machame Hut, cross a small valley and begin our ascent. The environment changes from heath forest to moor lands. These moor lands are littered with two species of giant groundsel, Senecios and Lobelia. Halfway up the trail we meet a river gorge and ascend across the Shira Plateau (12,300!). We sleep at Shira Camp.

July 15: Today we climb to 14,800! while crossing a ridge and view the plains far below. Here we eat lunch and admire the ancient glacier ice of the Breach Wall before dropping to our 12,800! campsite at Great Barranco.

July 16: We climb up and over the Great Barranco, topping out at about 14,500! before dropping to our camp at the Karanga River at about 13,000!. This completes another day of acclimatization as we pass below the famous Breach Wall, the largest ice and rock face in Africa. The Breach Wall climbing route, known as "The Icicle!, was first climbed in the early 1970!s by Reinhold Messner. Daytime temperatures can reach (80°F), while evening temperatures often drop below freezing.

July 17: From the Karanga River we climb about 5-6 hours to our high camp at Barafu (14,650!). As we wind through beautiful and rarely traveled regions, we enter a high desert plateau, littered with volcanic boulders. Looking south we view the desert plains as the pinnacles of Mowenzi Peak tower before us. At Barafu we prepare for the summit attempt. While our cook staff prepares the food, we spend our time packing and preparing for the early morning, 2:00am departure.

July 18: Summit day! Awake at midnight and prepare gear for the ascent. We climb wearing headlamps until the predawn light is reflected off the African plains. Following a distinct ridge we approach the crater!s rim, then traverse northwest along the rim to the main summit, Uhuru Peak (19,340!). From here we view the Bismarck Towers, rock pinnacles along the rim and the hanging Rebman Glaciers. As the sun rises over Africa, we are privy to a panorama of incredible views. To the north stands the second highest mountain on the continent, Mt. Kenya (17,056!/5199m), with its unique twin summits. The southern exposure reveals the sprawling plains of Tanzania and East Africa and Mowenzi Peak. After enjoying the view from the top, we descend to Barafu, pack camp, and begin our traverse down the Mweka route on the southern side of the mountain.

July 19: The sunrises are exquisite as we awaken below the towering mountain. We descend through the lush green landscape of the Mweka route into the thickest jungle we have yet encountered. The environment becomes primordial, with 20 foot-tall fern trees creating a prehistoric atmosphere. After reaching the Mweka Gate we drive to Arusha and enjoy a celebratory dinner.

Reader Comments (2)

Thank you for sharing these details so we can all better picture what an amazing adventure this will be!! WOW!!!

July 5, 2011 | Unregistered CommenterKatie D.

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Gucci Heritage Medium Shoulder Bag

It is suitable for her to carry in spring or summer. It is neither too large not too small. The size of 15¼ x 10¼ x 2¼ inches is just suitable for a middle-aged woman. The beige color will definitely suits most of her clothes. The GG fabric with light tobacco leather trim is not sophisticated. With these features, this one is great for you to buy for a middle-aged woman!
Coach Hamptons Haircalf Patchwork Tote

This one is bright with a multi-colored design. It features colors like red, brown and tan. It looks casual. It has large dimension of 18 x 12 x 8½ inches. This one is definitely practical enough for her daily use.
 
Burberry Nickie Star Check Tote

With a chic look, this one is specially designed for people of middle-aged. It has red stitching on the edges. The pattern with stars is classic. The 11½"W X 13½"H X 6½"D cotton lining makes sure its functionality.
 
Louis Vuitton Damier Azur Bag N51184

This one is elegant and practical. It is large enough for people to put many items with space for A4 size papers. It is made of Damier canvas with red linings. It is decent with a simple look. A woman will be happy to receive such a high-end and functional bag.
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October 21, 2011 | Unregistered Commentermarc jacobs replica

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