It seems my life is always pointing me in some new direction. I tend to follow my heart and try to embrace and recognize new opportunities when they present themselves. Life has certainly provided me with obstacles along the way. My life changed forever when I was diagnosed with Multiple Sclerosis in 1987.

I used to say that I’ve worked very hard to never let my MS define me. How ironic is that? I realize now that that’s exactly what it’s done. It DOES define me – not by the negative aspects of the disease – but by the  positive way I tackle life. You don’t need to know that I have MS to recognize that I am very compassionate and have an extraordinary amount of personal drive. It would seem that MS has actually made me a better person.

My 12-year-old son is on the autism spectrum, my daughter has been struggling with ADHD since first grade and my oldest son became insulin dependent at age eight. Because of my experience with MS, I am better equipped than most to endure  these challenges and guide my children over their latest hurdles. In turn, they have become amazing people in and of themselves.

About 6 years ago, I decided to try exercising again. I wanted to see if my body would cooperate. I could barely walk a mile when I started, but have since run 7 half marathons. I am not a star, but find that I am a positive role model, especially when I influence others to be healthier in some small way.

Until now, only my closest friends and long-time associates are aware of my health challenges. I was afraid that learning about my disease might make my business associates and clients apprehensive. I am writing this blog to share with you what's  possible with MS, how I'm dealing with it on a daily basis and what I've learned from my MS peers 

I had the great opportunity to participate in the Leap of Fairth MS/PD expedition to Mt. Kilimanjaro in July 2011. I got me out there sharing the story of what's possible with MS. I am motivated to raise awareness for the disease and learn more from my MS peers everyday. MS has made me stronger in ways I cannot comprehend. 


CLIMB (July 10 - 24, 2011)

I believe we are Team 2


Limited edition prints signed by Susie Weber are still available.


MUSIC check out the song



Here it goes (in no particular order)

Climb Mt. Kilamanjaro

Half Marathon on the Great Wall of China

Complete a Triathalon

Draw every day in a sketchbook. Just for me, not for anyone else.

Spend more time with my kids 

Help my parents

Garden (not just in spring, but all summer long)

Submit a short story to a magazine

Take voice lessons (I am sure some of you are amused by this)

Practice Spanish with Josh

Run a full marathon

Travel more

Cook new recipes

Advocate, Advocate, Advocate (for those who cannot and for causes that I believe in)

World peace

Collaborate with Sher on the books we have been discussing

Match all the socks in the basket

See more of the USA

Shoot a pistol

Go fly fishing

Trail run in the Italian Alps

Do Service Work





Just catching up from being torn in many directions this past holiday. Friday night egg coloring at my sister-in-law's, Saturday Easter with my husband's family and Sunday is with my side.

Holidays and family time can be good but I don't think we can ever express enough thanks for these events. Or understand how we will treasure them when they change or become extinct. No matter how prepared you are for such events they take a lot of effort and coordination. For instance, I wonder if my parents will ever know what a wonderful tradition they have established for us all. Not only does my Mother put together a gorgeous table and culinary masterpieces that are unforgettable (BTW I need to add that my Mom is has been doing this long before anyone ever heard of Martha Stewart), but she makes sure the grandchildren continue to be amused by the easter egg hunt (even if the ages range from 10 to 21). 

I have come to appreciate the handing down of recipes and the fact that now I get the chance to bring something to add to the feast as well. I am grateful for the years I was able to just show up and partake when my kids were babies and my health was sketchy. Still it all is a lot of work and  I hope my children recognize how special these holiday gatherings are. As my father's health declines my brother and I felt the need this year inquire whether of not our family should continue gathering at my parent's place or if it was time we stepped up to relieve our parents of the responsibility.

None of us really want the tradition to end or change, we just don't want our family holidays to cause undue stress or burden. I am not sure we know the outcome of this inquiry yet. Nothing needs to be determined until Thanksgiving anyway. 

Still I wonder how it feels to be in their shoes. I know when my MS causes me to make choices I don't want to make. These choices can make you feel like you aren't in charge anymore. But I suspect my parents will think it all through and when they truly believe it's time to pass on the baton they will. At least they officially know they have options now. Funny, as I write this it occurs to me that I bet they knew this all along and find it amusing on some level that my brother and I thought we needed to bring it up.



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