It seems my life is always pointing me in some new direction. I tend to follow my heart and try to embrace and recognize new opportunities when they present themselves. Life has certainly provided me with obstacles along the way. My life changed forever when I was diagnosed with Multiple Sclerosis in 1987.

I used to say that I’ve worked very hard to never let my MS define me. How ironic is that? I realize now that that’s exactly what it’s done. It DOES define me – not by the negative aspects of the disease – but by the  positive way I tackle life. You don’t need to know that I have MS to recognize that I am very compassionate and have an extraordinary amount of personal drive. It would seem that MS has actually made me a better person.

My 12-year-old son is on the autism spectrum, my daughter has been struggling with ADHD since first grade and my oldest son became insulin dependent at age eight. Because of my experience with MS, I am better equipped than most to endure  these challenges and guide my children over their latest hurdles. In turn, they have become amazing people in and of themselves.

About 6 years ago, I decided to try exercising again. I wanted to see if my body would cooperate. I could barely walk a mile when I started, but have since run 7 half marathons. I am not a star, but find that I am a positive role model, especially when I influence others to be healthier in some small way.

Until now, only my closest friends and long-time associates are aware of my health challenges. I was afraid that learning about my disease might make my business associates and clients apprehensive. I am writing this blog to share with you what's  possible with MS, how I'm dealing with it on a daily basis and what I've learned from my MS peers 

I had the great opportunity to participate in the Leap of Fairth MS/PD expedition to Mt. Kilimanjaro in July 2011. I got me out there sharing the story of what's possible with MS. I am motivated to raise awareness for the disease and learn more from my MS peers everyday. MS has made me stronger in ways I cannot comprehend. 


CLIMB (July 10 - 24, 2011)

I believe we are Team 2


Limited edition prints signed by Susie Weber are still available.


MUSIC check out the song



Here it goes (in no particular order)

Climb Mt. Kilamanjaro

Half Marathon on the Great Wall of China

Complete a Triathalon

Draw every day in a sketchbook. Just for me, not for anyone else.

Spend more time with my kids 

Help my parents

Garden (not just in spring, but all summer long)

Submit a short story to a magazine

Take voice lessons (I am sure some of you are amused by this)

Practice Spanish with Josh

Run a full marathon

Travel more

Cook new recipes

Advocate, Advocate, Advocate (for those who cannot and for causes that I believe in)

World peace

Collaborate with Sher on the books we have been discussing

Match all the socks in the basket

See more of the USA

Shoot a pistol

Go fly fishing

Trail run in the Italian Alps

Do Service Work



« It's coming! | Main | Spreading the news. »

Happy Birthday, Dad!

It's been week since the climb and hope to start posting more my thoughts on trip. I am getting caught up on my day-to-life...or maybe I should say as caught up as I can be. : )

Today is my Dad's 78th birthday and I can't pass up the opportunity to say what an amazing father he has been to me. An innovator, entrepeneur, world-reknown engineer and still he's the best Dad ever. He has always encouraged me to do my best and reach my goals. Starting my own business over 20 years ago was definitely a result of the power of one of his many suggestions. We've always had a great relationship and as he struggles with interstial lung disease I am surprise how our roles shift sometimes.  

My Dad told me he wished he could have climbed Kili with me. Watching Lori Schnieder climb with her 79 year-old father touched my heart and made my thoughts shift to my Dad. As my breathing became more and more difficult I couldn't help but think about his daily need for oxygen. Most of us take for granted things like breathing. On the mountain I was forced to focus on almost every single breath from high camp to the top. It was a labor-intensive process and I was choosing to do this. 

So Dad, here's to you and how amazing you are. Happy Birthday.



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Reader Comments (2)

Beautiful tribute to a very special man, Susie! Happy Birthday, John!!

August 19, 2011 | Unregistered CommenterKatie D.

What a great post. My dad is 70 tomorrow and I am glad to have him around. We almost lost him this past December.

August 21, 2011 | Unregistered CommenterGina A.

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