WHO IS SUSIE WEBER?

It seems my life is always pointing me in some new direction. I tend to follow my heart and try to embrace and recognize new opportunities when they present themselves. Life has certainly provided me with obstacles along the way. My life changed forever when I was diagnosed with Multiple Sclerosis in 1987.

I used to say that I’ve worked very hard to never let my MS define me. How ironic is that? I realize now that that’s exactly what it’s done. It DOES define me – not by the negative aspects of the disease – but by the  positive way I tackle life. You don’t need to know that I have MS to recognize that I am very compassionate and have an extraordinary amount of personal drive. It would seem that MS has actually made me a better person.

My 12-year-old son is on the autism spectrum, my daughter has been struggling with ADHD since first grade and my oldest son became insulin dependent at age eight. Because of my experience with MS, I am better equipped than most to endure  these challenges and guide my children over their latest hurdles. In turn, they have become amazing people in and of themselves.

About 6 years ago, I decided to try exercising again. I wanted to see if my body would cooperate. I could barely walk a mile when I started, but have since run 7 half marathons. I am not a star, but find that I am a positive role model, especially when I influence others to be healthier in some small way.

Until now, only my closest friends and long-time associates are aware of my health challenges. I was afraid that learning about my disease might make my business associates and clients apprehensive. I am writing this blog to share with you what's  possible with MS, how I'm dealing with it on a daily basis and what I've learned from my MS peers 

I had the great opportunity to participate in the Leap of Fairth MS/PD expedition to Mt. Kilimanjaro in July 2011. I got me out there sharing the story of what's possible with MS. I am motivated to raise awareness for the disease and learn more from my MS peers everyday. MS has made me stronger in ways I cannot comprehend. 

 

CYBERCAST LINK FOR 
THE MS/PD KILIMANJARO
CLIMB (July 10 - 24, 2011)

I believe we are Team 2


PRINTS

Limited edition prints signed by Susie Weber are still available.

 

MUSIC check out the song

 

SUSIE'S EVER-CHANGING BUCKET LIST

Here it goes (in no particular order)

Climb Mt. Kilamanjaro

Half Marathon on the Great Wall of China

Complete a Triathalon

Draw every day in a sketchbook. Just for me, not for anyone else.

Spend more time with my kids 

Help my parents

Garden (not just in spring, but all summer long)

Submit a short story to a magazine

Take voice lessons (I am sure some of you are amused by this)

Practice Spanish with Josh

Run a full marathon

Travel more

Cook new recipes

Advocate, Advocate, Advocate (for those who cannot and for causes that I believe in)

World peace

Collaborate with Sher on the books we have been discussing

Match all the socks in the basket

See more of the USA

Shoot a pistol

Go fly fishing

Trail run in the Italian Alps

Do Service Work

 

 

« LEARNING TO TELL MY STORY | Main | MORE than a mountain »
Saturday
Jun252011

Itinerary

July 10-11 Fly to Arusha, Kilimanjaro International Airport, Tanzania
July 12 Gear checks, briefing, meeting our team of 28 brave souls!
July 13 Climb Kili Gate-Machame Hut 6mi/10km 9,900ft/3000m
July 14 Climb Machame Hut-Shira Hut 5mi/8km 12,500ft/3800m
July 15 Climb Shira Hut-Barranco Hut 6mi/10km 12,900ft/3900m
July 16 Climb Barranco Hut-Karanga Valley 3mi/5km 13,300ft/4055m 
July 17 Climb Karanga Valley-Kosovo Camp 3mi/5km 15,600ft/4760 m
July 18 SUMMIT DAY Kosovo-Uhuru Peak 4mi/7km 19,344ft/5896m
July 19 Descend-Mweka 8mi/13km Shower time! Celebration dinner!
July 20 Safari-Tarangire National Park
July 21 Safari-Visit Masai village & Ngorongoro Crater
July 22 Safari-Ngorongoro Crater & Serengeti National Park
July 23 Sunrise Balloon rise over the Serengeti plains, Homeward bound!
July 24 Home-Sleep for a week, revel in the accomplishment, smile forever!

Reader Comments (1)

I am so happy and excited for you! What an amazing adventure!!

June 25, 2011 | Unregistered CommenterKatie D.

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