WHO IS SUSIE WEBER?

It seems my life is always pointing me in some new direction. I tend to follow my heart and try to embrace and recognize new opportunities when they present themselves. Life has certainly provided me with obstacles along the way. My life changed forever when I was diagnosed with Multiple Sclerosis in 1987.

I used to say that I’ve worked very hard to never let my MS define me. How ironic is that? I realize now that that’s exactly what it’s done. It DOES define me – not by the negative aspects of the disease – but by the  positive way I tackle life. You don’t need to know that I have MS to recognize that I am very compassionate and have an extraordinary amount of personal drive. It would seem that MS has actually made me a better person.

My 12-year-old son is on the autism spectrum, my daughter has been struggling with ADHD since first grade and my oldest son became insulin dependent at age eight. Because of my experience with MS, I am better equipped than most to endure  these challenges and guide my children over their latest hurdles. In turn, they have become amazing people in and of themselves.

About 6 years ago, I decided to try exercising again. I wanted to see if my body would cooperate. I could barely walk a mile when I started, but have since run 7 half marathons. I am not a star, but find that I am a positive role model, especially when I influence others to be healthier in some small way.

Until now, only my closest friends and long-time associates are aware of my health challenges. I was afraid that learning about my disease might make my business associates and clients apprehensive. I am writing this blog to share with you what's  possible with MS, how I'm dealing with it on a daily basis and what I've learned from my MS peers 

I had the great opportunity to participate in the Leap of Fairth MS/PD expedition to Mt. Kilimanjaro in July 2011. I got me out there sharing the story of what's possible with MS. I am motivated to raise awareness for the disease and learn more from my MS peers everyday. MS has made me stronger in ways I cannot comprehend. 

 

CYBERCAST LINK FOR 
THE MS/PD KILIMANJARO
CLIMB (July 10 - 24, 2011)

I believe we are Team 2


PRINTS

Limited edition prints signed by Susie Weber are still available.

 

MUSIC check out the song

 

SUSIE'S EVER-CHANGING BUCKET LIST

Here it goes (in no particular order)

Climb Mt. Kilamanjaro

Half Marathon on the Great Wall of China

Complete a Triathalon

Draw every day in a sketchbook. Just for me, not for anyone else.

Spend more time with my kids 

Help my parents

Garden (not just in spring, but all summer long)

Submit a short story to a magazine

Take voice lessons (I am sure some of you are amused by this)

Practice Spanish with Josh

Run a full marathon

Travel more

Cook new recipes

Advocate, Advocate, Advocate (for those who cannot and for causes that I believe in)

World peace

Collaborate with Sher on the books we have been discussing

Match all the socks in the basket

See more of the USA

Shoot a pistol

Go fly fishing

Trail run in the Italian Alps

Do Service Work

 

 

« HIKING IN THE KETTLE MORAINE | Main | Itinerary »
Monday
Jun272011

LEARNING TO TELL MY STORY

These days I find myself talking to people about multiple sclerosis more than ever before. I am getting more confident discussing MS in casual business conversation as well. Since the day I sent in my deposit check I promised myself that I would embrace every chance to talk about the MS Kilimanjaro climb and be a more active advocate for MS. Before that time I rarely spoke of my disease for fear that I would be perceived as weak or possibly overlooked for projects. (Having my own business for twenty-plus years I was afraid to take the risk).

But that was almost a year ago and I find that the people I share my story with become more inspired than they expected, too. I can't tell you how many people thank me for getting them motivated to run, back to the gym or just out there walking a little everyday. And a few people even ponder putting Kilimanjaro on their bucket lists and some or just opting in on living a healthier.

I suppose people feel empowered because they know I have never possessed natural athletic ability and if I can do the things I have learned to do so can they. My clients seem to instantly make a connection between the passion I've always had for my work and the personal drive necessary to fight against MS. They tend to be surprised to find out that I have MS, but not surprised by the ways I choose to live with it.

I find most people know someone in their immediate circle that has been touched by MS and can't wait to share the news of our Kili climb with them. Again I find myself humbled by how amazing this journey has been so far and wonder what I will learn from my teammates and how that will further impact my life and others.

 

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    LEARNING TO TELL MY STORY - SUSIE'S MS BLOG ARCHIVES FROM THE KILIMANJARO CLIM - Multiple Sclerosis (MS) inspiration and possibilities

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