WHO IS SUSIE WEBER?

It seems my life is always pointing me in some new direction. I tend to follow my heart and try to embrace and recognize new opportunities when they present themselves. Life has certainly provided me with obstacles along the way. My life changed forever when I was diagnosed with Multiple Sclerosis in 1987.

I used to say that I’ve worked very hard to never let my MS define me. How ironic is that? I realize now that that’s exactly what it’s done. It DOES define me – not by the negative aspects of the disease – but by the  positive way I tackle life. You don’t need to know that I have MS to recognize that I am very compassionate and have an extraordinary amount of personal drive. It would seem that MS has actually made me a better person.

My 12-year-old son is on the autism spectrum, my daughter has been struggling with ADHD since first grade and my oldest son became insulin dependent at age eight. Because of my experience with MS, I am better equipped than most to endure  these challenges and guide my children over their latest hurdles. In turn, they have become amazing people in and of themselves.

About 6 years ago, I decided to try exercising again. I wanted to see if my body would cooperate. I could barely walk a mile when I started, but have since run 7 half marathons. I am not a star, but find that I am a positive role model, especially when I influence others to be healthier in some small way.

Until now, only my closest friends and long-time associates are aware of my health challenges. I was afraid that learning about my disease might make my business associates and clients apprehensive. I am writing this blog to share with you what's  possible with MS, how I'm dealing with it on a daily basis and what I've learned from my MS peers 

I had the great opportunity to participate in the Leap of Fairth MS/PD expedition to Mt. Kilimanjaro in July 2011. I got me out there sharing the story of what's possible with MS. I am motivated to raise awareness for the disease and learn more from my MS peers everyday. MS has made me stronger in ways I cannot comprehend. 

 

CYBERCAST LINK FOR 
THE MS/PD KILIMANJARO
CLIMB (July 10 - 24, 2011)

I believe we are Team 2


PRINTS

Limited edition prints signed by Susie Weber are still available.

 

MUSIC check out the song

 

SUSIE'S EVER-CHANGING BUCKET LIST

Here it goes (in no particular order)

Climb Mt. Kilamanjaro

Half Marathon on the Great Wall of China

Complete a Triathalon

Draw every day in a sketchbook. Just for me, not for anyone else.

Spend more time with my kids 

Help my parents

Garden (not just in spring, but all summer long)

Submit a short story to a magazine

Take voice lessons (I am sure some of you are amused by this)

Practice Spanish with Josh

Run a full marathon

Travel more

Cook new recipes

Advocate, Advocate, Advocate (for those who cannot and for causes that I believe in)

World peace

Collaborate with Sher on the books we have been discussing

Match all the socks in the basket

See more of the USA

Shoot a pistol

Go fly fishing

Trail run in the Italian Alps

Do Service Work

 

 

« NEXT WEEK | Main | LIFE HAPPENS »
Monday
Mar072011

NEVER GIVE UP

The second half marathon I ran was in the Fox Cities, in 2008. I promised a good friend that I would run with her and help her train. She excelled and finished well ahead of me. We still run together when our lives permit and are signed up for the Green Bay half this May. 

But the most memorable part about this half was the feature in the morning paper. The story was about a local woman who was participating with a hand-crank wheelchair. The real story is that she was the top female runner for many years and continues to participate. She has multiple sclerosis (MS) and doesn't let it stop her from partaking in her sport of choice. 

As I read the article I was a bit freaked out. I didn't want to think about my MS — not on race day. As selfish as it sounds, I didn't want my disease floating around in my head as I pounded out my 13.1. Then I suddenly knew I had to meet her. 

She arrived surrounded by a flock of people and wheeled up about 10 feet from where I was standing. It was fate no doubt. I approached her and said I had read the morning paper and was inspired. This wasn't really true. I was more curious than anything. I wondered what she would be like. Her body was fit and frail at the same time, but her eyes had strength. As she grabbed my hand hard I could feel her shake. I told her that I had MS too and was hoping to finish. That's when she spoke. Her words were labored and slow and time stood still. I knew she was telling me to never give up and keep running as long as I can. But I fixated on how difficult it was for her to get her words out and my eyes started to well up. All I could do was to say “thank you” and find my place in the sea of people.

The race started. And, this woman captivated my thoughts throughout the race. I thought about her perseverance, contentment and strength. She still inspires me. I finished and decided I would continue to run or hand-crank. “Never give up” sounded like a good plan.

 

 

 

 

 

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