It seems my life is always pointing me in some new direction. I tend to follow my heart and try to embrace and recognize new opportunities when they present themselves. Life has certainly provided me with obstacles along the way. My life changed forever when I was diagnosed with Multiple Sclerosis in 1987.

I used to say that I’ve worked very hard to never let my MS define me. How ironic is that? I realize now that that’s exactly what it’s done. It DOES define me – not by the negative aspects of the disease – but by the  positive way I tackle life. You don’t need to know that I have MS to recognize that I am very compassionate and have an extraordinary amount of personal drive. It would seem that MS has actually made me a better person.

My 12-year-old son is on the autism spectrum, my daughter has been struggling with ADHD since first grade and my oldest son became insulin dependent at age eight. Because of my experience with MS, I am better equipped than most to endure  these challenges and guide my children over their latest hurdles. In turn, they have become amazing people in and of themselves.

About 6 years ago, I decided to try exercising again. I wanted to see if my body would cooperate. I could barely walk a mile when I started, but have since run 7 half marathons. I am not a star, but find that I am a positive role model, especially when I influence others to be healthier in some small way.

Until now, only my closest friends and long-time associates are aware of my health challenges. I was afraid that learning about my disease might make my business associates and clients apprehensive. I am writing this blog to share with you what's  possible with MS, how I'm dealing with it on a daily basis and what I've learned from my MS peers 

I had the great opportunity to participate in the Leap of Fairth MS/PD expedition to Mt. Kilimanjaro in July 2011. I got me out there sharing the story of what's possible with MS. I am motivated to raise awareness for the disease and learn more from my MS peers everyday. MS has made me stronger in ways I cannot comprehend. 


CLIMB (July 10 - 24, 2011)

I believe we are Team 2


Limited edition prints signed by Susie Weber are still available.


MUSIC check out the song



Here it goes (in no particular order)

Climb Mt. Kilamanjaro

Half Marathon on the Great Wall of China

Complete a Triathalon

Draw every day in a sketchbook. Just for me, not for anyone else.

Spend more time with my kids 

Help my parents

Garden (not just in spring, but all summer long)

Submit a short story to a magazine

Take voice lessons (I am sure some of you are amused by this)

Practice Spanish with Josh

Run a full marathon

Travel more

Cook new recipes

Advocate, Advocate, Advocate (for those who cannot and for causes that I believe in)

World peace

Collaborate with Sher on the books we have been discussing

Match all the socks in the basket

See more of the USA

Shoot a pistol

Go fly fishing

Trail run in the Italian Alps

Do Service Work





I am on my way in an hour!




References (5)

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  • Response
    [...]TODAY'S THE DAY! - SUSIE'S MS BLOG - MS inspiration and possibilities[...]
  • Response
    TODAY'S THE DAY! - SUSIE'S MS BLOG ARCHIVES FROM THE KILIMANJARO CLIM - Multiple Sclerosis (MS) inspiration and possibilities
  • Response
    TODAY'S THE DAY! - SUSIE'S MS BLOG ARCHIVES FROM THE KILIMANJARO CLIM - Multiple Sclerosis (MS) inspiration and possibilities
  • Response
    Response: posture brace
    TODAY'S THE DAY! - SUSIE'S MS BLOG ARCHIVES FROM THE KILIMANJARO CLIM - Multiple Sclerosis (MS) inspiration and possibilities
  • Response
    Response: posture brace
    TODAY'S THE DAY! - SUSIE'S MS BLOG ARCHIVES FROM THE KILIMANJARO CLIM - Multiple Sclerosis (MS) inspiration and possibilities

Reader Comments (7)

I know you will make it good all the way!

July 10, 2011 | Unregistered Commenterpeh

I'm so excited for you!! Praying, of course :)

July 10, 2011 | Unregistered CommenterKatie D.


I am so excited for you to make this climb. It seems you have been climbing mountains for many years and this is another one in your beautiful journey of life. You are certainly an inspiration to me and many others. I am praying for your safety and for you to reach your dreams. When you arrive back home, Jim would be happy to get you some donuts to celebrate!

Keep pushing~

July 12, 2011 | Unregistered CommenterCathy T.

I haven't been out to your site since I sent a text early Sunday a.m. - wishing you well and all the best on your amazing journey! I am sure it is fantastic!

But today - I couldn't help but notice an entry on your bucket list that has escaped me before..... Trail run in the Italian Alps..... Honestly, you never cease to amaze and inspire! Be safe - prayers are with you.

July 15, 2011 | Unregistered CommenterLaure

Congrats Susie on making it to the top. That is a great accomplishment. I talked to your amazing, wonderful, athletic husband last night and he told be what you were doing. Aganin Congrats.

July 21, 2011 | Unregistered CommenterBrandon B

I've been listening to the cybercasts...hope you had fun on the safari but most of all...congrats on making it to high camp and the summit. How did your Go Girl work out?

July 22, 2011 | Unregistered CommenterJackie

congradulations susie, we knew you would make it,. your mom and i were in the site atleast
50 timeas a day to find out how yu were doing, This trip will was not only a dream come true but a challenge of yourself, and you came thru with flying colors. You are an inspiration susie and so proud of you. Now it is time to rest and knowing you like i do you will be planning your next adventure. Dena wanted up to dates every day you were gone., love ya Mrs, B

July 24, 2011 | Unregistered Commenterkay bertieri

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